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Fatal to fearless : 12 steps to beating cancer in a broken medical system
2024
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Publishers Weekly Review
In this competent debut guide, Giusti, a former pharmaceutical executive and founder of the Multiple Myeloma Research Foundation, recounts her experience with cancer to dispense advice about navigating the U.S. healthcare system. In the late 1990s, doctors told 37-year-old Giusti she had multiple myeloma and only three years to live. The disease went into remission after years of grueling treatments, but in 2022, Giusti was diagnosed with breast cancer and had a double mastectomy. Woven into Giusti's recovery story is a 12-step program for how cancer patients can take control of their medical care. For instance, she expounds on how to build the right medical team, telling how she fired a doctor for showing up to her appointment unprepared and recommending that readers find a "lead" doctor at a research institution to direct treatment while an "execution" doctor oversees its administration. Giusti's personal reflections are frequently heartwarming (after she told her four-year-old son she had cancer, he replied, "Mom, you got this! Can I have an ice cream sandwich?"), and the advice is solid if occasionally surface-level (the recommendation to "establish what you will need" before starting treatment includes suggestions to create a budget and identify financial assistance programs without detailing how to do so). Still, it's a worthwhile resource for readers looking for guidance after a cancer diagnosis. Agent: David Black, David Black Literary. (Feb.)
Booklist Review
Giusti's combined memoir and how-to guide weaves together her personal experience as a cancer survivor with what-to-do tips. Giusti responds to her diagnoses, first with myeloma (tumors in the bone marrow) and later with breast cancer, with the gusto of a Harvard Business School graduate. Indeed, that's where she and her husband met. She is the type of person who goes through eight rounds of in vitro fertilization to get pregnant while simultaneously dealing with cancer. She includes excerpts from inspiring interviews, including one from cognitive scientist Maya Shankar's podcast, A Slight Change of Plans. Throughout her account of her own experience, she shares questions that can help anyone get a life back on track. For example, a counselor asks her and her husband to come in ready to say where they see themselves in six months, one year, and two years. Giusti admits to being too driven at times, but action-plan fans will love her and her advice to: "go SMART" (specific, measurable, achievable, relevant, time-bound) with their goals. She also reminds readers to say "thank you" and "I love you."
Summary


An empowering, soul-baring personal account and guide from a two-time cancer survivor and healthcare disrupter that shows anyone how to deal with a frightening medical diagnosis in America today, providing the knowledge necessary to take ownership of personal wellbeing and maximize the chances for survival.

More than twenty-five years ago, Kathryn Giusti was diagnosed with multiple myeloma at age thirty-seven and given three years to live. With a young child, a happy marriage, and a successful career, Giusti had too much to live for. An "impatient patient," she overcame her fear and got to work, learning to advocate for her own care. This book is the result of all she's learned about how to get the best outcome from America's opaque and sometimes impossible-to-navigate healthcare system.

Fatal to Fearless tells the story of how Giusti took on the system and turned it to her advantage not once but twice when she was diagnosed with breast cancer a few years ago. It is a crash course in surviving a grim diagnosis, organized around twelve simple steps, with practical tips for everything from how to build your healthcare team and learning which online sources to trust, to understanding the science and identifying which tests to ask for in the new genomic era and how to access the treatments and studies that could save your life.

At its center is a gripping personal story that reveals difficult, yet honest truths about illness, family, friendship, marriage, and the business of medicine. Giusti lays bare her soul as she walks you through the steps for handling any diagnosis and includes insights from medicine's top insiders on the frontlines of physical and emotional healing and care.

Sick people deserve a fighting chance. Giusti's mission to democratize medicine--and healthcare--has never been more imperative, or more urgent. Hopeful, wise, and packed with hard-won knowledge, this book gives you the concrete tools and inspiration to fear less and live more.

Table of Contents
Forewordix
Introductionxiii
Part 1The Wake-Up Call
Step 1Understand the Diagnosis3
Step 2Meet the Specialists20
Step 3Rethink What Matters41
Step 4Make Your Action Plan58
Part 2Buying Time
Step 5Get the Right Team77
Step 6Get the Right Tests99
Step 7Get the Right Treatments119
Step 8Know the Right Trial150
Part 3Living Ahead
Step 9Reset (Again)169
Step 10Recognize Your Caregivers187
Step 11Never Miss a Screening205
Step 12Protect Your Family222
Part 4The Final Reset
Epilogue: My Final Reset245
Acknowledgments259
Index262
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